The Myths of Hospice |
| Myth #1:
Hospice is a place. |
| Hospice care
takes place wherever the need exists--usually the patient’s
home. About 80% of hospice care takes place at home. Services can
be provided wherever the person resides. |
| Myth #2:
Hospice is only for people with cancer. |
| More than 1/5
of hospice patients nation-wide have diagnoses other than cancer.
In urban areas, hospices serve a large number of HIV/AIDS
patients. Increasingly, hospices are also serving families
coping with the end-stages of chronic diseases, like emphysema,
Alzheimer’s,
cardiovascular, and neuromuscular diseases. |
| Myth #3:
Hospice is only for old people. |
| Although the majority of hospice patients are older, hospices serve
patients of all ages. Many hospices offer clinical staff with expertise
in pediatric hospice care. |
| Myth #4:
Hospice is only for dying people. |
| As a family-centered concept of care, hospice focuses as much on
the grieving family as on the dying patient. Most hospices make their
grief services available to the community at large, serving schools,
churches and the work-place. |
| Myth #5:
Hospice can only help when family members are available
to provide care. |
| Recognizing that terminally ill people may live alone, or with
family members unable to provide care, many hospices coordinate community
resources to make home care possible. Or they help to find an alternative
location where the patient can safely receive care. |
| Myth
#6: Hospice is for people who don’t need a high level
of care. |
| Hospice is serious medicine. Most hospices are Medicare certified,
requiring that they employ experience medical and nursing personnel
with skills in symptom control. Hospices offer state-of-the art palliative
care, using advanced technologies to prevent or alleviate distressing
symptoms. |
| Myth
#7:
Hospice is only for people who can accept death. |
| While those affected by terminal illness struggle to come to terms
with death, hospices gently help them find their way at their own
speed. Man hospices welcome inquiries form families who are unsure
about their needs and preferences. Hospice staff is readily available
to discuss all options and to facilitate family decisions. |
| Myth #8:
Hospice care is expensive. |
| Most people who use hospice are over 65 and are entitled to the
Medicare Hospice Benefit. This benefit covers virtually all hospice
services and requires little, if any, out-of-pocket costs. This means
that there are no financial burdens incurred by the family, in sharp
contrast to the huge financial expenses at the end of life which
are incurred when hospice is not used. |
| Myth #9:
Hospice is not covered by managed care. |
| While managed
care organizations (MCOs) are not required to include hospice coverage,
Medicare beneficiaries can use their Medicare hospice
benefit anytime, any where they choose. They are not
locked into the end-of-life services offered or not offered by
the MCO’s
services, but are likely to gain access to hospice care upon
inquiry. |
| Myth #10:
Hospice is for when there is no hope. |
| When death is in sight, there are two options: submit without hope
or live life as fully as ever until the end. The gift of hospice
is its capacity to help families see how much can be shared at the
end of life through personal and spiritual connections often left
behind. It is no wonder that many family members can look back upon
their hospice experience with gratitude, and with the knowledge that
everything possible was done towards a peaceful death. |
| By Naomi Naierman, President and CEO of the
American Hospice Foundation |